TSR Politics: Congresswoman Ayana Presley is representing not only her congressional district of Massachusetts, but also the millions of people who live in this country with alopecia.
That’s why state representatives are fighting for Medicare to cover wigs. “[I know what it’s like] Not your own choice, to experience change, ”Presley said Vanity Fair Her life with alopecia is an autoimmune disease that causes hair loss.
“When you feel like your body is betraying you and you feel inferior to yourself – it’s already challenging,” Presley said, “but being bald as a woman really disrupts what’s appropriate, what’s professional, what’s conventional and social norms. What’s interesting, feminine, ”she said. “It’s a lot more than cosmetics … it takes a real toll.”
Ayana on Thursday introduced a bill re-int on the last day of Alopecia Awareness Month with her fellow Massachusetts representative James McGovern, who pays for the wigs of those who experience hair loss due to medical or disease.
Ayana says many people living with alopecia – who have no known cause or cure – seek medical wigs to deal with their hair loss. But according to Aina, medical wigs are usually not a low-cost option for those living on a fixed income.
“Doctors told me that patients refused treatment for life-saving cancer because they feared they would lose hair and they didn’t know how to deal with it,” McGovern said.
McGovern spoke from his own personal experience, which is why the subject is also close to his heart.
McGovern’s 20-year-old daughter, who has been diagnosed with rare cancer, has also dealt with hair loss.
“The thing he’s most worried about is having to go through chemotherapy,” he said. “Losing your hair in the 20’s – it’s a really traumatic thing.”
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